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Creactivists' Voice: The Beginning

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Chaos Theory online [Jun. 23rd, 2008|10:44 pm]
Creactivists' Voice: The Beginning

You may find Chaos Theory on LiveJournal at chaos_zine or here on Facebook: http://www.facebook.com/group.php?gid=20763137372&ref=mf
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Inviting everyone in this community to submit essays or writing of any kind to a new literary zine! [Jun. 23rd, 2008|10:15 pm]
Creactivists' Voice: The Beginning

Chaos Theory now welcomes submissions for its Summer 2008 inaugural issue - poetry (formal, free verse, or any combination of both), narrative nonfiction, personal experience and slice of life essays, scientific and travel and journalistic nonfiction, short fiction, profiles of and interviews with local or international 'interesting people' or worthwhile projects, graphic art, photography, scanned or photographic images of any kind of visual art, etc.

We are honored to accept work of varying kinds and styles and generally will not turn down submissions unless the content is obscene or hateful and without accompanying artistic or intellectual worth.

For now please send submissions to my email (Cristina Deptula at cedeptula@sbcglobal.net) or comment here with a short description of and a link to your work. We hope to soon designate a team of editors to review various types of material but for now I would be happy to disseminate the information.

Please pass on the word to anyone else who needs a soapbox for his/her cause and can speak coherently about the matter, to anyone else with some unique artistic endeavor, to anyone else who's creating something interesting or elegant or informative and whom you believe should have a larger audience.
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BP opinion q's-- [Jan. 15th, 2008|06:17 am]
Creactivists' Voice: The Beginning

 Hey guys--opinion question here:

What, if any, books have you found to be true to the issue of living with bipolar disorder?

What books or authors do you feel really understand and relate to what it feel like to struggle with bipolar disorder daily (and is not overly preachy)?

x-posted all over the bp planet

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Cross Your Fingers and Your Toes.... [Mar. 18th, 2007|09:23 am]
Creactivists' Voice: The Beginning
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[mood |worrieduneasy]

So I have sent a letter of concern to the ER nursing director, the hospital's "Quality Services", the Ombudsman, and the Epilepsy Foundation of Vermont since New Hampshire doesnt have its own office, and Vermont is probably the closest. I'm feeling uneasy because that may be going overboard, but I stated in the letter that I wanted to file a complaint with the weight of seriousness the matter requires, so that they review and change their practices. I'm also uneasy because I claimed it was "unconscionable" for them to have yelled: "Anastasia you're too heavy! You're going to hurt somebody!" when they lifted me up during my seizure and demanded that I walk to the gurney but I couldnt move my legs...so they had to carry me. (They shouldnt have lifted me during a seizure in the first place, in the air, not to a lying position). True as it may be, it might constitute as libel. The terms of my complaint were basically that I wanted these practices reviewed and for them to seek out training on the proper treatment for those with epilepsy.

This is an important issue. Though my own case had mild consequences, there have been deaths and lawsuits regarding the lack of knowledge and misguided practices of "first responders" in the treatment of someone who is having a seizure. This simply has to be reversed.
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Epilepsy Foundation News and Events....x-posted [Mar. 18th, 2007|09:01 am]
Creactivists' Voice: The Beginning


Join the 'National Walk for Epilepsy' on Saturday March 31
NBC's "Heroes" Helps Epilepsy

Join us on the National Mall to highlight the importance of epilepsy awareness and the need to raise funds for more epilepsy research. Walk Chair Greg Grunberg (star of NBC's "Heroes") and thousands of dedicated supporters of people with epilepsy and their families will walk on the Mall at the start of cherry blossom season in Washington, D.C. The National Walk for Epilepsy is presented by the Epilepsy Foundation and Ortho McNeil Neurologics, Inc.

Watch Greg Grunberg's 'National Walk for Epilepsy' Public Service Announcements
Plus, Greg's show has created a special opportunity for "Heroes" fans to bid on autographed collector's edition artwork while supporting the millions of people with epilepsy and their families.

Also, more opportunities to support epilepsy awareness and education are available at our our special eBay auction.

>>Mothers living with epilepsy – Let your voice be heard! The Epilepsy Foundation wants to know your needs and what issues you need to be addressed.

» The Jeanne A. Carpenter Epilepsy Legal Defense Fund works to end epilepsy-related discrimination and injustice through education and increased access to legal services.

» The Epilepsy Foundation is the national voluntary agency solely dedicated to the welfare of over 3 million people with epilepsy in the U.S. and their families.
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Emergency Room Care for Seizures [Mar. 1st, 2007|02:06 am]
Creactivists' Voice: The Beginning

"I'm mad as hell and I'm not going to take it anymore..."

I dont have a clue if my experiences are similar to anyone else's, anyone else at all, in my region, in my state, in the USA, in the world, etc.
I think it would be a good idea if I found out.

I know for sure that I have been incompetently treated in the emergency room when in for seizures. I really think its mostly a matter of the nursing staff not having a clue what to do. Seizures are scary for those who have them, but perhaps more so for those who have no idea what its like and how it works. I sympathize, however, these people are supposed to be PROFESSIONAL CAREGIVERS.
My complaints are as follows, just from my visit today:

1. I was beginning to seize and they asked me to sign a form. The effort to try and sign the form brought on the full blown seizure. And my signature ended up taking up the whole page. Totally unuseable.
2. I was in the midst of a full blown seizure and they were asking me to do things like move my arm over here, etc.
3. They hauled me out of the wheel chair during my seizure and then screamed at me "You're too heavy! You are going to hurt somebody!" when I couldnt walk to the stretcher.
4. At no time did anyone even after the seizure and everything had calmed down did they show me where the call button was. I held my urine for over an hour waiting to ask someone to go (in case they needed a urine sample), ended up ripping electrodes off myself so I could get up and go to the nurses' station to ask. The nurse said yes. Within 1/2 an hour a nurse came and told me they needed a urine sample. I told her about having already gone and that I had no call button.
She said that a urine sample was what the doctor had been waiting for, and this was the same nurse who told me I could go before. I told her I had no call button. She hauled one out from behind some drawers and wires and left without a word.
5. People turned on and off my light without saying a word to me.
6. When they were taking me to get a CT scan the nurses talked to each other as if I wasnt there...the only thing they said to me was, as if I was 2 years old, "the doctor wants to look at your head now" as her way of informing me we arrived at the radiology department.
7. Four times I requested my family to be with me, to which they said that they were going out to tell them come in. The nurses never approached my family, even though they were in the waiting room. The time my Mom asked to see me, they claimed that the doc didnt want me to have any extra stimulis. The only way I got my Mom in was to catch someone coming in the door visiting someone else.
8. When I get myself up to go to the bathroom, my bed tipped at the end I got up from because the side bars were up and had been up for 3 hours even though I had not had any seizure activity during those three hours, and I could not put them down. I believe thats actually considered an illegal restraint.

I understand the necessity of ascertaining whats happening with the physicality of the person having a seizure, but moving and asking them to walk themselves I think is a gross misunderstanding of whats going on with someone having a seizure.
I think a little respect for an epileptic's dignity and humanity is also a necessary improvement.

I would like to know if others have similar experiences or tips on re-educating hospital care staff, to facilitate activism to remedy this problem.
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Surprise in the mail [Jan. 23rd, 2007|12:41 pm]
Creactivists' Voice: The Beginning
[mood |anxiousanxious]

I wonder if anyone here is aware of child support issues and such here for New Hampshire. I received a surprise in the mail today, that has quite taken me aback, unpleasantly.

The letter was a copy of a child support order that was supposedly in court 3 weeks ago. This final order states that my ex husband was ordered to pay only $50 dollars a month in child support and $10 a month towards what he already owes. He owes more than $12,000 from when we lived in NY and he has only ever paid $50 towards child support since we've lived in NH (about 7 years now). The last time we were in court over support was in 2004, at least that I know about, when the same was ordered for a period of only 6 months until my ex either got a job or got on disability, and as far as I know it was never reviewed...until now. I was never informed that the issue was coming up 3 weeks ago, and this final order states that this is what the order will be in effect until he dies, and payments are suspended until he is off public assistance. The problem is that I'm on disability, and as such my daughter receives public assistance, and so as far as the court is concerned he owes the state, not my daughter. But shouldnt my daughter's rights/advocate be informed if not represented at a preceeding like this?

I'm also frightened because my ex was VERY abusive, and if he was in the area I would like to know. Some weeks ago, I dont remember exactly when, I saw someone in my town that looked like him but I told myself I was just being silly since I hadnt heard from him for at least a couple of years. I'm frightened in part because when we were getting divorced he said he would wait until she was about this age to kidnap her.

Some part of me says, "So what?" I've never thought that she would get any significant support from him, and I really dont care about money but am fairly happy he is no longer apart of our lives. But I feel very very sad for my daughter, who has the issue of a father who doesnt give a damn hanging over her head constantly for all her life.

So he basically never has to pay child support. He never paid but once the last time he was ordered to pay $50 plus $10, and it doesnt sound like this order will be up for review. I think my daughter has the right to expect something from him, but I just feel cut up inside and I have no clue what to do.
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This New Year of Creactivist's Voice is dedicated to... [Jan. 10th, 2007|02:55 pm]
Creactivists' Voice: The Beginning
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[mood |contemplativecontemplative]



As regards to education, in addition to my intention to enroll in college, I have been requesting and receiving books on various topics related to disability and disability policy through interlibrary loan.

The list is below the lj cut. I wonder if anyone has ever read any of these, has any comments on books they have read, or would like to know some titles of books on topics about disability not covered here. Any Comments?

Read more...Collapse )
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Cross your fingers.... [Jan. 10th, 2007|02:43 pm]
Creactivists' Voice: The Beginning
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[mood |optimisticoptimistic]

I've finally written to the supervisor of VR, and explained my situation with collated exhibits. I sent copies of this also to the counselor involved and the director of CAP (Governor's Commission on Disability/NH). I dont know why its taken me so long to do this, but part of the impetus was attending a meeting in Conway on December 13th where VR had public discussions on the effectiveness of their programs, and recommendations for the next fiscal year. Those collecting commentary, to assemble into the report of recommendations for the next year, were very friendly and open. They answered questions that were raised and left unanswered by my treatment, and so I became more knowledgeable about what SHOULD have happened instead. Also, I've compiled a new plan so that I can gain the skills necessary to commit myself to counseling others who encounter similar difficulties, and again, I'm asking for their help. It seems ridiculous to ask for their help when they have been so unwilling to give it otherwise, but the time has come for them to realize who they are supposed to serve, how they are supposed to do it, and why.

So cross your fingers, and let's hope I can get somewhere this time!
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New files included.. [Dec. 9th, 2006|09:43 pm]
Creactivists' Voice: The Beginning
Visit the msn and yahoo groups for new england region's vocational rehabilitation contact information and Client Assistence Program.
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